Ezra’s Story
Ezra is a young boy with Spinal Muscular Atrophy type 1, he loves school and is supported by a team of specialist Registered Nurses.
Ezra is a young boy with Spinal Muscular Atrophy type 1, he loves school and is supported by a team of specialist Registered Nurses.
Ezra is a bright and curious boy who was born with Spinal Muscular Atrophy (SMA) type 1, a condition that affects all his muscles, including his breathing and swallowing muscles.
He leads a life full of wonder and excitement—especially when it comes to his love of space. Ezra can even tell you all about what Saturn’s rings are made of!
At school, Ezra loves spending time with his friends, and he always gets a good night’s sleep, thanks to the round-the-clock support he receives from his dedicated nursing team,
To help manage the complex needs that come with SMA type 1, Ezra has a PEG feeding tube since he cannot swallow, and he wears a back brace to help keep him seated comfortably in his wheelchair. His clinical needs mean Ezra requires consistent nursing support.
During the day, a team of highly trained paediatric nurses from Superior Healthcare accompany him to school, ensuring he can fully participate in his education and social life. At night, the nursing team continues their care, allowing Ezra’s parents to rest, knowing their son is in safe hands.
Spinal Muscular Atrophy type 1 is a life-limiting condition, but with the expert care and treatment Ezra receives, he’s thriving as his cheeky, fun-loving self, enjoying school and playing with his friends.
His dedicated nursing team, led by his Nurse Manager, not only ensures his physical well-being but also gives his family the peace of mind they need to be their best for Ezra.
We’re proud to provide the round-the-clock nursing care that supports Ezra and his family with compassionate, expert care personalised to his unique needs.
When the Superior Healthcare nurses came on board, I realised I did need a good night’s sleep to be able to look after Ezra the next day. They became part of our family quite quickly.
They love Ezra, they care for him, and I can see that really clearly, so I can trust them.
– Portia, Ezra’s mum
Whether you’re seeking day, night, live-in or 24/7 nursing care we can help.
To get started complete the form, or call 01227 774873.