Huntington’s Disease

Superior Healthcare provides tailored, nurse-led care, to support people living with Huntington’s disease to maintain their independence and freedom of choice while living safely at home.

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Care for people living with Huntington’s disease

Superior Healthcare understands the profound impact Huntington’s disease has on individuals and their loved ones.

We are used to working with families, like our founders, who have had to make significant adjustments to their home and lifestyle following a life-changing incident or diagnosis.

Our team of experienced, qualified, and compassionate healthcare assistants and registered nurses are carefully matched to each client’s personality. All team members receive thorough, client-specific training, ensuring that we can support our clients to live safely and comfortably at home.

How we can help

Our nurse-led team offers tailored home care for children, young people, and adults – as well as respite for families. Whether it’s day, night, or 24-hour nursing care, we can help. W offer:

Day or night care
24-hour care
Live-in care
Student support

Specialist care package

Our specialist team of carers and nurses provides comprehensive support, from managing daily symptoms and clinical interventions to de-escalating behaviour – making our clients feel safe, valued, and heard. They expertly recognise and manage our clients’ changing physical, emotional, and cognitive needs, offering both social and clinical care.

People living with Huntington’s disease experience choreic movements, necessitating full moving and positioning support as their care needs evolve. We collaborate with third parties to help clients and families adapt their homes with equipment such as hospital beds, hoists, and mobility aids.

Evolving care

Because Huntington’s disease symptoms change over time, our nurse managers and expert care team continuously track any changes in the individual’s health, personal goals, and lifestyle.

This could include, for example, maintaining a routine of self-care and social support from friends and family to alleviate anxiety or adjusting medication administration, breathing support, and feeding methods due to dysphagia.

Nurse managers work with multidisciplinary teams, including case managers and ICBs, to regularly reassess the care plan and implement new care strategies as needed.

Complex care brochure

Clinical support

We work with children, young people, and adults living with Huntington’s disease on a long-term basis, evolving their clinical and social care support as required. The clinical interventions we can provide include:

Tracheostomy and/or ventilator care (BiPAP/CPAP) and support to maintain a clear airway
Gastrostomy or jejunostomy care
Full moving and positioning
Personal care, including continence care
Suction or cough assist support
Positive behaviour support
Medication administration
Epilepsy management

For us, it's personal

Superior Healthcare was founded in 2006, following our CEO’s own experience of locating a care package to support his brother, Alex, who sustained a traumatic brain injury at age 11.

Having experienced firsthand the importance of high-quality, compassionate, and consistent complex care, we are driven to ensure that everyone – including people living with Huntington’s disease – can live a fulfilled life, with fun, dignity, independence, and choice.

Our Story

Make a referral

Are you or a loved one living with Huntington’s disease?

If your care is funded by an NHS ICB, a county council, or a Case Manager or Financial Deputy, we can discuss transferring your care to Superior Healthcare.

Let us help you. To get started, complete the form or call us at 01227 774873

Huntington’s disease FAQ

Superior Healthcare supports people and their families who are self-funding care or have personal health budgets.

If your care package is commissioned by an NHS ICB, a county council, or a Case Manager or Financial Deputy, we can talk to them about moving to us today.

To enquire about the cost of a package, click ‘Make a referral’ or call us at 01227 774873.

All our team members receive a five-day, in-depth, classroom-based training syllabus with practical workshops before being introduced to our clients.

The training covers all aspects of the Care Certificate and includes detailed instruction on the skills required to support complex client needs, such as tracheostomy management and gastrostomy.

Our care and nursing teams supporting individuals with Huntington’s disease receive client-specific training tailored to each person’s unique needs.

This training continues as the individual’s care evolves. All employees recruited to support people with Huntington’s disease are experienced and qualified.

Click ‘Make a referral’ or call us at 01227 774873.

Huntington’s disease is a progressive brain disorder that causes uncontrolled movements, emotional problems, and loss of thinking ability. Once symptoms begin, the disease gradually progresses, so living with it means having to adapt to change.

Superior Healthcare provides care and support for people who have Huntington’s disease and other underlying health conditions.

With the support of a team of specialist carers, support workers and nurses – including paediatric nurses – who have all completed specialist training, we help our clients to live safely at home.

Huntington’s disease is not something you can catch; it is inherited. Every child conceived naturally to a parent who carries the Huntington’s gene has a 50% chance of inheriting it.
A genetic test can find out if you have the faulty gene.
You can live with the faulty gene for years without symptoms, but if you do have it, at some stage you will develop symptoms. Doctors cannot predict when this will be.
Huntington’s disease affects both men and women. It usually develops between the ages of 30 and 50 but can start at any age. If you develop symptoms before the age of 20, this is known as Juvenile Huntington’s disease.

(Source: Huntington’s Disease Association)

Huntington’s Disease Association – https://www.hda.org.uk/
NHS: https://www.nhs.uk/conditions/huntingtons-disease/
Carers UK: https://www.carersuk.org/