Spinal Muscular Atrophy

Superior Healthcare provides personalised, nurse-led home care for individuals with spinal muscular atrophy, assisting children, young people, and adults to live well and independently.

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Spinal Muscular Atrophy

Care for people with spinal muscular atrophy

Superior Healthcare supports children, young people, and adults living with spinal muscular atrophy.

We create reliable, sustainable complex care packages that clients and their families can count on 24 hours a day, 365 days a year.

Together with a team of expert healthcare assistants and registered nurses, we focus on improving health outcomes, reaching milestones, supporting educational success, and assisting our clients to live life on their own terms.

 

Spinal Muscular Atrophy

Supporting daily needs and active lives

Our specialist team of carers and nurses provide comprehensive support, from household chores to clinical interventions, expertly recognising and managing our clients’ changing physical and social needs.

Individuals living with spinal muscular atrophy experience muscle weakness. Many of our clients use a gastrostomy (PEG) or jejunostomy tube for medication management and nutrition. Our expert team is also trained in providing non-invasive ventilation.

Thanks to our care and nursing teams, many of our clients lead active lives and pursue their passions as we manage their day-to-day symptoms.

Spinal Muscular Atrophy

Expert care and nursing team

The children we support enjoy visiting hydrotherapy pools and attending school with our specialist carers and nurses. We have also helped many young people access college and university.

We collaborate with third parties to help clients and families by adapting their homes to maintain a comfortable temperature and installing necessary equipment, such as hospital beds and hoists as mobility needs change.

Nurse managers work with multidisciplinary teams, including neuromuscular physiotherapists, occupational therapists, dietitians, and speech and language therapists, to regularly reassess the care plan and implement new care strategies as needed.

Clinical support

We work with children, young people, and adults living with spinal muscular atrophy, adapting clinical and social care support as needed. The clinical interventions we can provide include:

  • Tracheostomy and/or ventilator care (BiPAP/CPAP) and support to maintain a clear airway
  • Gastrostomy or jejunostomy care
  • Full moving and handling
  • Personal care, including continence care
  • Suction or cough assist support
  • Positive behaviour support
  • Medication administration
  • Epilepsy management
"When the Superior Healthcare Nurses came onboard, I realized that I did need a good night's sleep to be able to look after Ezra the next day. They became part of our family quite quickly. They love Ezra, they care for him, and I can see that really clearly, so I can trust them. And Ezras care has been a lot easier for me, so I am really grateful for them."
- Portia
Ezra's story
Stewart Thorpe

For us, it's personal

Superior Healthcare was founded in 2006, following our CEO’s own experience of locating a care package to support his brother, Alex, who sustained a traumatic brain injury at age 11.

Having experienced firsthand the importance of high-quality, compassionate, and consistent complex care, we are driven to ensure that everyone –  including people living with spinal muscular atrophy – can live a fulfilled life, with fun, dignity, independence, and choice.

Our Story

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