Motor Neurone Disease

Superior Healthcare provides tailored, nurse-led home care for people living with motor neurone disease.

Care for people living with motor neurone disease

Our nurse-led team offers tailored home care for children, young people, and adults living with motor neurone disease. Whether it’s day or night care, live-in care, or student support, we can help. We offer:

Day or night care
24-hour care
Live-in care
Student support

How we can help

The care provided for a person living with motor neurone disease depends on the stage of their disease, their personal goals and their preferences for care.

Many people we support living with motor neurone disease receive assistance with hoisting, personal care, ventilation, cough assist, enteral nutrition, and catheter care.

We support people living with motor neurone disease to maintain their independence at home. Our specialist support workers, healthcare assistants, and nurses are qualified, experienced, and receive comprehensive, client-specific training.

Evolving a care package

Our specialist team provides long-term support for individuals in the intermittent, advanced, and palliative care stages of motor neurone disease. We compassionately adjust our clinical, emotional, and social care support to match each client’s evolving needs, preferences, and wishes.

The Nurse Manager will document and implement these preferences. As the disease progresses, we will assist clients and their loved ones in discussing care options.

We ensure that our clients and their families have the necessary support from us and our multidisciplinary teams to make informed decisions about their care as symptoms arise.

Complex care brochure

Clinical support

We can assist children, young people, and adults living with motor neurone disease to live well by safely managing day-to-day symptoms through comprehensive clinical interventions. Our clinical support services include:

Tracheostomy and/or ventilator care (BiPAP/CPAP) and support to maintain a clear airway
Gastrostomy or jejunostomy care
Suction or cough assist support
Personal care, including continence care.
Medication administration
Full moving and handling
Positive behaviour support
Epilepsy Management

For us, it's personal

Superior Healthcare was founded in 2006, following our CEO’s own experience of locating a care package to support his brother, Alex, who sustained a traumatic brain injury at age 11.

Having experienced firsthand the importance of high-quality, compassionate, and consistent complex care, we are driven to ensure that everyone – including people living with motor neurone disease – can live a fulfilled life, with fun, dignity, independence, and choice.

Our Story

Make a referral

Are you or a loved one living with motor neurone disease?

If your care is funded by an NHS ICB, a county council, or a Case Manager or Financial Deputy, we can discuss switching your care to us today.

Let us help you. To get started complete the form or call us at 01227 774873.

Motor neurone disease FAQs

How much does care cost?

Superior Healthcare supports people and their families who are self-funding or using a personal health budget.

If your care package is commissioned by an NHS ICB, a county council, or a Case Manager or Financial Deputy, we can talk to them about moving to us today.

To enquire about the cost of a package, click ‘Make a referral’ or call us at 01227 774873.

What training do you provide to your care team?

Our team members receive a five-day, in-depth, classroom-based training syllabus with practical workshops before being introduced to our clients.

The training covers all aspects of the Care Certificate and includes detailed instruction on the skills required to support complex client needs, such as tracheostomy management and gastrostomy.

Individual, client-focused training continues after the initial classroom induction.

Our care and nursing teams supporting individuals with motor neurone disease receive client-specific training tailored to each person’s unique needs. This training continues as the individual’s care evolves.

All the employees we recruit to support people living with motor neurone disease are experienced and qualified.

How can I arrange care?

Click ‘Make a referral’ or call us at 01227 774873.

Facts about motor neurone disease:

Motor neurone disease (MND) describes a group of diseases that affect the nerves (motor neurones) in the brain and spinal cord that tell your muscles what to do.
MND is a life-shortening condition that progressively affects the brain and nervous system. Sadly, there is no cure.
It affects around 5,000 adults in the UK at any one time.
It can affect adults of any age, but is more likely to affect people over 50.
There is a 1 in 300 risk of getting MND across a lifetime.
With MND, messages from the motor neurones gradually stop reaching the muscles. This leads the muscles to weaken, stiffen and waste. MND can affect how you walk, talk, eat, drink and breathe.

(Source: Motor Neurone Disease Association).

Useful information:

Motor Neurone Disease Association: https://www.mndassociation.org/
NHS: https://www.nhs.uk/conditions/motor-neurone-disease/
Carers UK: https://www.carersuk.org/